The cardio version that took place at the last post was only successful for a few days. Xavier's heart went back into the flutter and he just continued to get sicker and sicker. His heart rate just kept getting slower and his resting heart rate would fall below 40, which is considered a pause in the beat. And his oxygen saturations were in the 50's...Very scary when your ICU room floods with doctors and nurses...
After 31 days in the hospital, Xavier was discharged. The first two weeks were rough. He struggled to eat, sleep and manage his pain...however, slowly but surely he began to feel better, eat better, sleep better and get his spirit back. Before we knew it he was getting stronger and happier and we were getting our baby back.
For us, this has been our most difficult summer. We have never seen Xavier so sick or struggle so much..but in the darkness his light always shined. God has been so good to us and we have never been alone. We can't thank our friends, family and heart community enough for the prayers, well wishes, gifts, phone calls, emails, text messages and hospital visits! We hope to pay it forward some day!
|Its' a GIRL!!|
|The perfect patient!|
|Everyday is filled with fun!!|
|A world class traveler!|
|Fun at the aquarium!|
|Family Fun Day|
|The Beach is the place to be!!|
|X loves Rhode Island!!|
|Fun during play time|
|Fun with Cousin Sue|
|Visiting with Connor|
|With his friend Molly after their first day of "school"|
|At play school!|