Courage is not the absence of fear, but rather the judgment that something else is more important than fear.

- Ambrose Redmoon

The way is not in the sky. The way is in the heart.


Friday, November 11, 2011

Sisters by Heart saves the day!!

I felt so alone! I had my parents, Nate, his parents, my friends, the doctors..but I was alone in this. I was carrying X. I felt him kick and swim inside me. I was the one who was suppose to keep him safe and warm. I was the one who needed to help him and I felt like I was failing. No, truth is I felt like I had failed!! I kept my sanity from January till May by doing research and finding out as much as I could about HLHS and CHOP. In my search I found my saving grace...Sisters by Heart. They are an amazing organization founded by a heart mom who has a beautiful little girl Zoe. Zoe is an HLHS and CHOP baby. I found a wealth of information. I liked their facebook page and wrote a message asking for answers. I got an answer within an hour. I also got a great care package in the mail about a week later with tons of stuff that we still use today. All of the sudden I was not alone anymore. I had hundreds of moms that I could talk to. I have heart mom friends from all over the country. California, Arizona, PA and right in my own backyard in Morristown. They offered me support, tips, they cried with me when it got to be too much. These sisters of mine held my hand long before X was born and they are still holding my hand today. Xavier even met his first friend through SBH. Stacie is mom to Kaylen and Kellen. Little Kellen was born in December 2010 with HLHS at CHOP. Stacie and I had been talking on facebook, but fate had a different plan for us. A week after X-man had his first surgery, Kellen was admitted to CHOP for his second. Believe it or not they were in the same pod as us. A true friendship was born and we talk almost every day. They came to visit us when X was having his stage 2 and even took us out for a much needed dinner. I know our kids will grow up to be life long friends. I have questions everyday. I have many heart friends that I can turn to with those questions. I only hope that I can help another mom someday the way that they have helped me. I feel blessed to know them!!

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